Around 8 this morning Sebastian has a bronch and surgery. He bronch showed that his trach has caused a malformation in the trachea , not uncommon , so he will need another surgery next month to fix that. To make a long story short Dr.F, along with a colleague will go in and attempt to remove said malformation, if everything stays where it is suppose to ( his airway not collapsing in on itself) then they will remove the trach and we will see how things go. If his airway *does* collapse , which everyone agrees in most likely the case, then they will remove a bit of rib cartilage and use it as a stint, close up the stoma and he will be vented for 3 days to recover. The part I am dreading the most is seeing him vented again....
Also , during this procedure his tonsils and adnoids were removed so he is not a happy camper right now. Over all though he is doing well, as I write he is playing the Wii and sporting a chocolate pudding mustache and goatee, the whole eating pudding and other assorted goodies (ie junk food city !) is going over great .
Recently Sebastian has acquired glasses, he is awesome with them. Roughly two weeks ago we went to a new eye Dr who , after one visit, decided to put him in glasses. Apparently his right eye is*so* bad that it is essentially turning off the distorted impulses to his brain. Good thing is that is fixable with glasses and ... ready for this... 4 hours of patching is left eye everyday... to strengthen his eye. Hopefully this will work over time and we can avoid yet another surgery .
On the good news front Sebastian has been accepted for a wish through Make-A-Wish and we will be heading to Disney later this year ! We are all so excited.
Lastly , awhile back Sebastian was accepted for a Littlest Heros photo shoot and last week we finally were able to get together to do them - talk about worth the wait !! Not only are the preview pix fantastic the photographer was brilliant with him ! I *HIGHLY* recommend her to anyone interested in getting some picture done !http://karaguffeyphotography.com/blog/2009/07/19/little-hero/
