We're baaaaaaaaaaaaaaaack ......

Sorry I have been away so long - it has been a crazy few weeks or so chock full of appointments,playgroups,therapists, a freak windstorm and illnesses but not necessarily in that order ....

Here is a quick rundown :

We met with an orthopedist to get Sebastian measured,then followed up with a fitting and are now owners of a pair vehicle and flag covered SMOs. The SMO , short for supramalleolar orthotic are more or less a braces for his feet to help with his low tone issues I have touched on before and while a bit more than we had originally thought necessary will still allow him to wear everyday shoes and have pretty much normal range of motion in his feet ankle. (http://surestep.net/about.html)

September 14th our area was mauled by Hurricane Ike leftovers (http://www.whas11.com/video/?z=y&nvid=286587) which knocked out the power to like 80% of the area or something utterly insane like that. Some of our neighborhoods were out for over a week, which left people like Sebastian and other members of our family who are dependent on electricity to live in a very vulnerable spot. We had one family memeber end up in the hospital after a night in a hotel and another two spending time in an unpowered apartment.
We were lucky in that our power came back on the following evening. We spent the first day calling every public assistance place we could think of Red Cross, Salvation Army etc for help to no avail. Through luck we found a bed and plug for Sebastian's machines for the first night but the second day was again filled with a panic of calls to every hotel, motel and public assistance place we could think. As we were heading to a part of our city I had never even heard of to a place I prayed would work out our neighbor called and said our power was back on. The streets on either side of us didn't have power for at least 4-5 day more. Keep in mind this lovely little windstorm also occurred during the Rider Cup so a large section of the city's hotel rooms were booked prior. To quote an old friend of mine 'Fun Times' !!!

Sebastian had another round of the MRSA/pseudo crud combo that put him in the hospital last time but his pulmnologist was on board with me and quickly started him oral/inhaled antibiotic regimen which lo and behold seemed to kill it out.

We have finally met with an Occupation Therapist which was a bear to get scheduled, lol and have a bit more insight on the kiddo. Mostly making official things we already knew or suspected and gave some us some suggestions on how to go about helping him over come some of it.

Halloween came and went... Sebastian was a vampire for the third year in a row... it is one of the few costumes that do not require a mask, wig, fur or makeup to look good. This year Sebastian did warm up to the make-up thing after I fought a few kitty whiskers on his face and handed him a mirror a few weeks before Halloween at a local parade. By the week before Halloween he was randomly sporting whiskers,vampire fangs , goatees and mustaches at times. He was even asking me for whiskers today... lol.

With Sebastian third ( yup, you read that right ...THRID) birthday creeping up in January it seems like we have half a dozen deadline and an endless stream of paper work to sift through and sign. Some of it makes me laugh , such as the section where it asks for Drs, therapist or specialists who has worked with child within the past 12 months and gives me three spaces.... Sebastian has eight or nine people to file under that - complete with addresses, phone numbers and the maiden name of their next door neighbor's pet groomer...... Then there is the questions that ask me to explain why Sebastian is unlike his peers ... hmmm... let me count the ways....
(Too bad they don't ask how he is like his peers , that is were the wow factor really kicks in , in my humble opinion :oD )

Currently Sebastian is sick with some funky stomach bug or another that he has been fighting since late PM Wednesday. Poor guy is unable to keep much of anything down or anything in, which as lead to seven wardrobe changes in one day , I am starting to feel I am working backstage at a Vegas show. He has perked up some over the last two days , even eating a banana , some applesauce and a handful of crackers within the last 24 hrs. He has been pounding back the Pedilite so he is keeping hydrated , at we aren't having to worry about that , lol.

I guess that is enough for now , lol. Thanks for all the notes and emails for concern , sorry for worry you guys but it is nice to know so many people care. :o)